The last twenty four hours have been the longest on record. I know that mathematically every twenty four hour period is the same, but any parent who has had a child in the hospital knows what I mean. The good news is that Joseph had a miraculous turn-a-round. He has stabilized and is in much better condition to go into surgery. Mary and I have been able to come home to regroup and catch our breath.
Last night at 7PM Joseph was transferred to the Cardio-Thoracic ICU. It is an amazing unit. They changed some of his meds and took some extreme measures. He did not respond immediately and Joseph was being set up for emergency heart surgery for this morning. His blood pressure had dropped and he was to the point that his kidneys were beginning to fail. We stayed at the hospital all night and got a little sleep at about 1am. We woke up at 5am and we were expecting more bad news. What we heard instead was that he had responded to the treatment and his kidneys had better function. He even had his eyes open and he looked dramatically better.
Joseph is not out of the woods yet, but he is in much better condition to tolerate the surgery that will be done on Monday or Tuesday. We will try to update this site as soon as we know when the surgery will be.
On the spiritual front I can tell you that we have had our struggles. The unit allowed Fr. Matt to come in to see us last night. He helped bridge our faith and after he left at about midnight thirty, he went back to the St. Francis Chapel and said a mass for Joseph. This coincided with Joseph's medical turn-a-round. Several times Mary and I have felt strong feelings of peace, even at the most difficult times. The power of prayer is getting us through. Thank you for your continued spiritual support.
God Bless,
Kenny and Mary.
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2 comments:
Kenny and Mary,
We've been reading your updates on a regular basis and our prayers are with you and your family. If you need anything, picking the girls up from school, helping with their homework, or feeding them don't hesitate to call. If you need blood, we are willing to donate. Cindy has "Type O Hero" blood that is very compatible with infants. i have "A+".
God Bless and let us know if you need anything.
Howie and Cindy
Oh my!! Emily Bowing forwarded this information to me.... I can't begin to express how sorry I am you all are going though this!! My name is Ann (Sbicca) Neffeler... I knew Mary from our childhood in San Marino, but haven't been in contact since We moved away when I was 9.... that's why you won't recognize my name :-) Anyway, I am so sorry to hear about your precious baby, and will keep him and all of you in my prayers daily!!! My husband and I just went through 2 hospital stints and major surgery with our 7 month old son(just under 6 months old at the time) and I know how scary having your baby go through surgery is ... (he was diagnosed with Hirschsprungs disease 6 weeks ago)... I too believe the power of prayer (and an excellent surgeon) got him... and us.. through it all!! Please know I will check back daily and be thinking of you all and praying for a speedy recovery!!! It's amazing how resilient these babies are!! Please let Mary know I say hello and send a HUGE "friend from the past" hug.
God Bless,
Ann (Sbicca) Neffeler
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