Joseph was able to sleep well and his numbers are very good---and there are lots of numbers! They count everything! His heart rate, fluid intake, oxygen level, fluid outflow, respiration rate, respiration strength,blood pressure, temperature, and a few things that I cannot read, are all tracked and noted. They take a blood sample and send it to the lab and that gives them a whole page of numbers! So when they say his numbers are very good it is really saying something!
May you have many good numbers today...
Kenny
Tuesday, May 24, 2011
Monday, May 23, 2011
Time for a good nights sleep. Thank you all so much
Prayers are powerful things. It has been quite a day. Our family is fortunate to have such a great "support group" out there. We wish you all a peaceful evening knowing that God is good and Joseph is doing well.
Doing Well!
I just got to see him. He is still sleeping. His numbers are good but they had to leave his breathing tube in. They will take that out tonight. He has only been awake a few seconds at a time and is very out of it.
Your prayers are working.
Thank you--Kenny
Your prayers are working.
Thank you--Kenny
So far so good
It takes awhile to set up all the plumbing. He will have lots of tubing when he gets out. The tough part of surgery is coming up. Here is a picure of Joseph when we checked in:
Here he is just before surgery---He would not smile but he was in good spirits:
Here he is just before surgery---He would not smile but he was in good spirits:
Keep the prayers going!
May 23 is here
Two months have gone by since we found out Joseph needed another open heart surgery. It has been a long process but we are finally at the surgery day. The process is stressful on a family but it also provides some incredible insight. Faith is strengthened, family gets closer and perspective is completely changed. Our conversations lately are not normal. We try to keep things normal but eventually conversations focus on Joseph. It is a humbling experience as so many friends offer prayers and support. Again---we are so very grateful.
With the surgery being at noon it is tough on a kid as they cannot eat after midnight. To help Joseph we had an early dinner at five and then a "Pancake Party" at 9PM. It was a bit unusual to be cooking pancakes at that time, but hopefully it will get him through a no breakfast morning. Here is a picture from Joseph's special meal.
Next up---8:15 mass,
God Bless,
Kenny
With the surgery being at noon it is tough on a kid as they cannot eat after midnight. To help Joseph we had an early dinner at five and then a "Pancake Party" at 9PM. It was a bit unusual to be cooking pancakes at that time, but hopefully it will get him through a no breakfast morning. Here is a picture from Joseph's special meal.
Next up---8:15 mass,
God Bless,
Kenny
Sunday, May 22, 2011
One Day Away
Thank you so much for all the prayers that are offered for Joseph's surgery and quick recovery. I have no idea how people without faith get through something like this. It is tremendously helpful when you let us know that you are praying for Joseph. It helps us stay calm and keep it in perspective.
We will not have to rush on Monday morning as his surgery has been scheduled for around noon. They generally take the infants or the more complicated surgeries first so I guess it is a good thing. Monsignor Bob at Assumption of the Blessed Virgin Mary Parish is going to offer the mass at 8:15am for Joseph. The later schedule will allow us attend the mass (as long as we can get everything together.) You are all invited. It will be good for Joseph to get out as he has been quarantined here at the house to keep him healthy for surgery. Please understand that he cannot give you a hug if you see him at mass. After mass we will head to the hospital as they want us to check in at 10am.
If you want to get an automatic email update when there is a post please enter your email address at the very bottom of this page.
With Gratitude,
Kenny
We will not have to rush on Monday morning as his surgery has been scheduled for around noon. They generally take the infants or the more complicated surgeries first so I guess it is a good thing. Monsignor Bob at Assumption of the Blessed Virgin Mary Parish is going to offer the mass at 8:15am for Joseph. The later schedule will allow us attend the mass (as long as we can get everything together.) You are all invited. It will be good for Joseph to get out as he has been quarantined here at the house to keep him healthy for surgery. Please understand that he cannot give you a hug if you see him at mass. After mass we will head to the hospital as they want us to check in at 10am.
If you want to get an automatic email update when there is a post please enter your email address at the very bottom of this page.
With Gratitude,
Kenny
Friday, May 20, 2011
Here we go again!
Joseph has been doing great but our last check up revealed that he will need another open heart surgery on Monday, May 23. We are reactivating this blog to keep his friends and family updated on his progress.
The surgery is necessary to correct a "sub aortic valve stenosis" or a narrowing of the aorta just inside the aortic valve. It is a common occurrence in kids that have Joseph's history. The doctors were not surprised to see it but they were surprised that it came on so quickly.
Joseph had is pre-op on Friday and all systems are go for Monday. Thank you for all the love, concern and prayers directed at Joseph. Once again we count on you to get us through and for that we are so grateful.
Kenny and Mary
p.s. we added the follow function--to get an email when there is a new post just enter your email at the bottom of the page. Here is a little video message from Joseph:
The surgery is necessary to correct a "sub aortic valve stenosis" or a narrowing of the aorta just inside the aortic valve. It is a common occurrence in kids that have Joseph's history. The doctors were not surprised to see it but they were surprised that it came on so quickly.
Joseph had is pre-op on Friday and all systems are go for Monday. Thank you for all the love, concern and prayers directed at Joseph. Once again we count on you to get us through and for that we are so grateful.
Kenny and Mary
p.s. we added the follow function--to get an email when there is a new post just enter your email at the bottom of the page. Here is a little video message from Joseph:
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